Bake Sale & #PurpleFriday

Yesterday I organised my first bake sale for Crohn’s and Colitis UK! As I only had the time to bake 3 full cakes they sold out before 10am so there was potential if I had made more! I had made some information sheets to be displayed, just easy reading facts and figures about IBD. As I couldn’t be there myself my Mother had to tell me how the information was received. She began to tell me that when she was approached by her colleagues, they would go on to explain that their friend or family member has Crohn’s or Colitis. Which I find happens a lot and i’m sure you have probably already notice this too.

I came away with just over £33!!   

AND I must thank everyone at the Stockport Headquarters for their donations yesterday and the support you have given my Mother this past year!! x

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We are coming to the end of Crohns and Colitis Awareness week! Today is #becrohnsandcolitisaware #purplefriday ! And in support of this charity today we wear purple and people are urged to take a photo of themselves wearing the colour and upload this on social media! Well, I don’t own a purple top so i’ve had to wear my Thai pants, they’re mostly purple.

Processed with VSCOcam with g3 preset This is Dexter looking like a racoon.

Crohn’s and Colitis Awareness Week!

From the 1st December it is Awareness Week! On Facebook, Crohn’s and Colitis have shared a VERY good picture explaining the sorts of symptoms that can be related to Crohn’s or Colitis, such as abdominal pain and diarrhoea and some information about the differences in the 2 Inflammatory Bowel Disease (this is another ‘umbrella’ term for these types of diseases)

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If you are worried about yourself or someone you know who has had these symptoms shown for a long period of time have a look at these links below;

Here is some information about IBD’s

Symptoms and concerns

Some information on tests and treatments for IBD

There is also an information line for people who would prefer to speak to someone 0845 130 2233

#BECROHNSANDCOLITISAWARE

Bag Tricks & Tips

You will learn your own ‘stoma personality’ and slowly you will figure out which products you like and dislike. I am one of those lucky few who have to use every product they make just to make my bag last 1 day leak free. My advice to those who are just dealing with having an ostomy put in, be brave and be strong. It is more than likely you will get upset from time to time as it gets frustrating when for THIRD time you are cleaning your stoma and cutting sticking a brand new bag, applying paste to a ring, using the skin protector spray, drying properly all because your stoma JUST WONT STOP FOR ONE SECOND! :@

But just KEEP ON! Bag changes WILL become easier and it WILL become second nature. I’ve had to do many in the most awkward of places, just before modelling job in a Booths (the Northern Waitrose) disabled toilets, or the time I was on a surf holiday in Devon and I had to change it in my car in the middle of a wheat field, it didn’t go well.

Below are a few tips just to take note as you develop and hopefully perfect your technique;

Products- with the guidance of your stoma nurse, try LOTS of them and eventually you will find the best for your ostomy.
Coloplast
Pelican
(Other brands are available)

Time- The best time for a bag change I think is before bed. Have a shower, use Adhesive Remover Spray to minimise the pain, ease the bag off, reduce skin damage too. Make sure you DRY PROPERLY. Try not to use toilet paper as it leaves residue on your skin, fluffy bits etc. If you use the protective spray make sure this is DRY TOO.

Heat- Your body’s warmth is the best adhesive for this product, the warmer the appliance is the better it sticks, this is why it’s also a good idea to shower so your skin is extra warm. I also use my hair dryer, especially if I manage to get water on my mouldable ring or bag just as I’m about to fix it to my body, it will dry off and you can go ahead and stick it!

Paste! I have to use lots. My Stoma is high and right next to my now deformed belly button so I have to pack the gap with paste and I need it for extra adhesive. It’s good to use if your stoma isn’t stuck out very much.
The benefits of an alcohol base is that it lasts. I won’t have to change it for at least 2 days but it is harsh on your skin. After 2 applications my skin can be bleeding and sore to the touch. Then changing using the paste again, it’s like squeezing lemon on a sore!
When it gets like this I use the Paste with NO ALCOHOL. It’s a nice paste, good for damaged skin however for me it will only last a day, it’s not very sturdy if your output is generally loose!

Lying down, stood or sat- I would not recommend lying down to change, if you have a small stoma it sinks inwards not allowing it to stick properly, think about how much your skin moves and stretches. Sat on the toilet, side of the bath or stood you might find is best. Get one of these things -> 9143779_R_Z001A_UC1402264

for storing your products, put it in your bathroom near where you sit to change. Makes everything a lot easier for you.

And remember if there is any change in your stoma, the colour, smell, swelling, excessive bleeding ( a few drops is normal) you MUST get in touch with your stoma nurse or doctor.
Please add your own Tricks & Tips in the ‘Leave a comment’ link at the top!

AMERICAN PANCAKES

Preparing for the family Christmas bake off I had a go at making American pancakes (they count, right?) and now I think they are my favourite easy meal. The recipe is simple and you can add so much good stuff or take away what you feel is bad stuff. I’m saying things I’m sure you already know.

Here’s the link to the recipe I use curtesy of the BBC.

If you want it light, use 0% milk, margarine, everything thats light, skimmed or diet. However if you’re like me, I load on the good stuff. Try tayloring it to yourself, dig out that sheet your nurse gave you for the do’s and don’t of food.  Stay away from fruit with skins and seeds.  Add Bananas to thicken output, natural yoghurt to reduce odour and manuka honey, known for its digestive health benefits, immunity against those winter colds and of course energy!

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Bag leaks can really pick their moments…

I told you my most embarrassing moments, so I thought let’s carry on the tradition, I love a good embarrassing story.

It was a few weeks ago on my first “modelling job” for a well known hair brand, I was to be used in their school in Media City. Mum decided to drop me off as I only get stressed driving in the morning, when we arrived we went for a quick coffee. I called in the toilets and to my horror, my bag had decided to burst (tights ladies, they might keep you tucked in, hide a few sins but I’d advise you to leave them rolled down a bit)

I don’t quite know what I would have done if my Mother wasn’t there. I showed her what happened and of course, now into my 9th month of recovery I don’t carry spares with me often. What a mistake. She ran off and returned with plasters and baby wipes, aren’t Mum’s amazing. ❤️

I ran over to the studio just making it in time. Stress?! You don’t know the meaning of it!

Crohn’s and Colitis UK Membership

A few months ago I signed up to Crohn’s and Colitis UK Membership , which I did online at http://www.crohnsandcolitis.org.uk/get-involved/Membership Its good to note that if you receive financial aid from the government you can state this in your application, receive a reduced rate or even a free membership for the year! If not, it is around £15 Annually.  With this membership you receive a ‘I can’t wait card’.

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It explains your need for the use of their facilities and that you do not have anything contagious, you just require their WC urgently. This card doesn’t ensure you entry to their staff toilets, locked toilets or otherwise, it’s just a polite way of asking and I suppose it looks ‘official’. I am yet to use it as I always go in and ask, tell them I have a card, and they let me in. Just having it tucked away in your purse can give you that little bit of extra confidence to ask, because if they do refuse, you have that to back you up.

Remember this card is given to every member not just people with ostomies so if you’re desperate, flash it (the card obviously).

Here are the links to the website: http://www.crohnsandcolitis.org.uk/get-involved/Membership

TONIGHT

healthier_together

Is the KEY 103 Healthier Together Campaign at the Palace Hotel Manchester! I’m so excited to be invited to such an event that should hopefully make a difference! I’m hoping we all get a chance to voice our own options about the NHS and how we feel it could be drastically improved in the Manchester area.

24 year old girl with Crohns and an Ileostomy. All things poop, food, fashion and advice

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